The mission entrusted last November to deputies Adrien Taquet and Jean-François Serres was to put forward proposals to "simplify the administrative process for people with disabilities".

The resulting 300-page report is based on an online consultation (with over 10,000 contributions).

The rapporteurs make a severe judgment on "the low level of official information available to people with disabilities or their relatives".

• "People have to find the information, identify the actors and take the right steps on their own.
• "People are often confronted with contradictory information, either because issuers misinterpret complex systems or because divergent practices exist between territories.
• "Rumors and misinformation continue to circulate on some forums and blogs, for example, regarding Autism Spectrum Disorders.
• "The lack of a reference information platform is a problem for people, but also for the various professionals (in the health and education fields, etc.) who have difficulty finding reliable resources on a subject whose subtleties and complexities they do not necessarily master.

A national digital platform for personalized and geolocated information and services

• This national information and service site must necessarily be linked to the MDPH sites. This linkage must make it possible to smooth the user's path between national information and an administrative path that will necessarily be local.
• The national portal should thus enable users to be directed to their MDPH and to the relevant local players, and to benefit from specific local information and news.

The information offered on the portal must also be personalized, "especially since no typical pathway can be identified, given the variety of situations. These factors must be integrated into the design of the site's architecture and the development of search methods. People with disabilities must be able to access a navigation system that allows them to reconstruct their situation step by step, in order to obtain information that is adapted and almost tailor-made.

To this end, the rapporteurs propose to " develop a range of personalized and geolocalized services: pathway simulators, simulators for assistance and out-of-pocket expenses, localized directories of local actors and specialized establishments with precise and up-to-date information, etc." (Proposition 9).

 System transparency, data transparency

This is also a cruel observation for the actors whose mission is to steer public policies in the field of disability.

The Caisse nationale de solidarité pour l'autonomie (CNSA) "does not currently have harmonized indicators to compare the activity of MDPHs despite the use of activity reports, which are declarative, incomplete and often heterogeneous .

"Some data exist at the local level but are not aggregated to the national level. Other data are theoretically available to the general public, but are not in fact available. There is no simple comparator for this data, which is drowned out by technical information that is not very relevant to users' needs.

As a result, the user " is not in a position, for example, to know how long it will take to be taken care of in an establishment, how much a particular practitioner will have to pay, or whether it is possible to send his or her child to the ULIS near his or her home.

The rapporteurs believe that it is necessary to"not only make the data available, but also easily accessible for the user. It is important, for example, to be able to choose a school or an establishment that best meets the needs of the individual, to have reliable, up-to-date and accredited information available on a single portal".

The rapporteurs propose to collect and disseminate in open data the data relating to the level and quality of service provided by MDPHs (proposal 10), to modify the regulations to allow the dissemination of the contact details of all health professionals whose skills meet people's needs" (proposal 11), to publish in open data the data on the quality of establishments known by ARSs and Departmental Councils (proposal 13), to collect and disseminate in open data the data relating to disability and to the inclusive policy of schools and higher education establishments, both public and private (proposal 14), to encourage local authorities to collect and disseminate their data in order to promote initiatives enabling people to have a better knowledge of the accessibility conditions of public facilities (proposal 15).

Making digital administration accessible

Despite abundant legislation (the law for equal rights and opportunities in 2005, articles 105 and 106 of the law for a digital Republic in 2016), "most public sites of the State, but also of local authorities, hospitals, or services that depend on one of these administrations are still not in compliance".

While the Inter-ministerial Committee on Disability (CIH) of September 20, 2017 reaffirmed the objective, within 5 years, of accessibility to public sites, the rapporteurs observe that "recently still sites and online procedures have been put online without being in compliance with the legislation in force"and that "the accessibility effort is often focused on the informative part of public sites, but that the service offer is often neglected or even forgotten" .

To this end, they propose that a real steering committee be set up for the accessibility of public sites, which goes beyond the accessibility, which is a priority but not sufficient, of the 10 main public sites. (Proposition 106).

The accessibility of public sites may not be sufficient for people who do not master digital tools today. This is the case for many people with disabilities, who need support to be able to benefit from the information and services provided by public authorities. The rapporteurs suggest that people with disabilities be explicitly taken into account as such in the "digital inclusion" plan (Proposition 107).

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